Welcome. Who is here? What is this?

Here's news and info about three primary blood cancers, Lymphoma, Myeloma and Leukemia with a decided patient's perspective.  I hope this helps whether you're newly diagnosed or veteran survivor.  

       Is this You?              This is me.            We're Not Alone!    

 Is this You cancer patient    Click This is me    We are not alone, cancer warriors
Check my:Link to my blog

 

Upcoming Events - see Calendar too

  • Sep 17
    AACR Rally for Medical Research Hill Day, Washington DC, Jack Speaking on funding Medical Rsearch,  Washington
     
  • Sep 20
    Hematologic Malignancies: Translating Discoveries to Novel Therapies, Jack Speaking, Philadelphia,  Philadelphia
     
  • Sep 23
    WORLD CDx Boston 2014, Jack Moderating a Panel of Experts, Opening Conversations that Matter,  Cambrigde
     
  • Sep 23
    Jimmy Fund - Special Events- Appreciation Night with Red Sox - Jack Speaking,  Boston
     
  • Oct 6
    Innovation Days, Pharma, Biotech & Medtech Event 2014 - Paris France Jack speaking Patient Empowerment,  Paris
     

Click my Social Media, good stuff

Professional Research Advocacy

American Association for Cancer Research

 

 American Society of Clinical Oncology

  

National Organization for Rare Diseases 

 

Research Advocacy Network

 

 

 

Society for Participatory Medicine

Health Advocate Code of Conduct and Professional Standards

WEGO Health Speakers Bureau

 

Connect With Me At ExpertFile

 

Music and audio player

Twitter Feed

As seen or quoted on these TV stations

2 News 3 News 8 10 News 12 News WIDK 10 28 News KCOY KCAU 9 KILL TV3 KLTV 7 KMPH 26 KOTA 28 News America my FOX LIVE HD 5 blip 28 News FOX-25 FOX-5 NEWS-25HD KYTX-19 NBC4i NBC29 ABC 33-40 WAND 17HD WBAY 2 WBOC 16 WECT 6 WHBQ 13 WITN WLBT 3 WMCT 5 WRCB 3 WSET 13 WTOC 11 WTVM 9 WVUE 8

Most recent videos on Youtube

Pfizer is keenly interested in the patient's voice as an integral part of the company's drug development program.  Pfizer's Value of Medicine Ad campaign features an interview with Jack where he shares some of his personal experiences.   

Pfizer Value of Medicines

Pfizer Value of Medicines, Jack Whelan's Story

Pfizer's "Value of Medicines" papers outline the social health and economic value of a variety of classes of treatments.  The supporting 90 second viodeo illustrates the positive impact that medicines have had on a patient, Jack Whelan.  Jack faced a life-threatening health condition.  His story provides insights into the important role that medicines have played in his journey toward improved health.

To read Pfizer's "Value of Medicines" papers visit:

http://www.pfizer.com/news/press_kits/value_of_medicines

 

At eyeforpharma's Patient-Centered Clinical Trials 2014 Conference in London, Jack speaks on how biotech and pharmaceutical companies can become more patient-centric.     

eyeforpharma Jack Whelan

eyeforpharma interview with Jack Whelan

Jack Whelan, ePatient and clinical trial proponent on how pharma needs to push the regulatory boundaries to fully engage with the patient and how a strict regulatory environment is hampering meaningful dialogue between pharma and the patient - See more at:

http://social.eyeforpharma.com/patients/video-cancer-survivor-jack-whelan-speaks-how-pharma-can-become-more-patient-centric

 

At Genentech's Give Back Week celebration at AT&T Park, Jack shared the stage with three magnificent cancer survivors Margie, Christina and Ali and real rock stars: Usher, Colbie Caillat and Foo Fighters. This video a short story of hope and survival was a key part of the presentation.     

Genentech gives back Jack Whelan

Genentech Gives Back Survivor Stories

Jack was featured at Genentech's 2014 Give Back week, now in its seventh year, a company-wide initiative that raises money for charity and encourages employees to volunteer with local and national non-profits. It gives employees a chance to reconnect with colleagues in the spirit of giving and helps the company collectively make real and positive changes in local communities.

Cancer Today MagazineCancer Today Story

I'm honored to be featured in Cancer Today magazine.  The author and now very good friend, Betty Russell and the Cancer Today team from AACR did a great job telling "my story".  I hope you find it helpful and hopeful and fun.  Sit back, relax and read.  I'm thankful for photos of my family and many friends who have been with me all the way. 

The medical team at Dana Farber Cancer Institute and Brigham & Women's Hospital is exceptional.
 
A special thanks to my oncologists- Dr. Nancy Chun at Winchester Hospital and Dr. Irene Ghobrial at Dana Farber Cancer Institute.  Far too many folks to thank here. 
  
BIG HUGS,    Jack
 

 

 

Welcome blood cancer peeps

Welcome blood cancer patients, caregivers & healthcare pros. Whether you're a patient, provider, payer or pharmaceutical, I hope you like this Research Advocate patient perspective on the research, care and cure of blood cancers, specifically Lymphoma, Leukemia and Myeloma.   

Until recently, I've been quiet about my 6 year battle with an incurable blood cancer, unusual for someone who's not afraid to speak up. As my best Italian friend Greg says, "you gotta do what you gotta do".  I'm beating this incurable cancer betting on Clinical Trials where targeted molecular agents are in development rather than conventional chemotherapy which is often borrowed from other blood cancer regimens to treat my specific blood cancer. Personalized "precision" Medicine is now changing all that. If you are facing a cancer battle, you must explore what treatment options are in Clinical Trials!

So I began writing and presenting key issues about living with blood cancer.  I started appearing on some TV and radio and got picked up by some national newspapers because of some charitable and fundraising activities and because there's an urgent need to educate lawmakers and government officials who make decisions about your healthcare options.  I went public!  It's no secret, I love public speaking, talking to the press, and helping other patients and caregivers. I'm earning my stripes as an effective Research Advocate and Event Speaker with a compelling message.

 

Personalized Medicine and the ePatient

There is a lack of knowledge about Personalized Medicine in development outside of a few leading centers of excellence and academia. With ubiquitous access to on-line information, the e-Patient movement is well underway, very positive for patients, healthcare professionals and providers.  Your physician may no longer the primary source of much needed, more current info, you can help. 

I've been told, "you should write a book, do more public speaking, get the message out about so many important topics".  I think I can communicate with more people via this site and blog to deliver more timely information and messages. Check my Twitter feed @JackWhelan.    

Click this

Please click my Blog for some fun and not so obvious patient insight. Learn what a CT scan has in common with a loaf of bread. What's is like to sit in an infusion chair? Look around, click one of the RED LINKs above.  I'd like to hear from you too! Thanks.   Jack

Online Scheduling