Welcome. Who is here? What is this?

Here's news and info about three primary blood cancers, Lymphoma, Myeloma and Leukemia with a decided patient's perspective.  I hope this helps whether you're newly diagnosed or veteran survivor.  

       Is this You?              This is me.            We're Not Alone!    

 Is this You cancer patient    Click This is me    We are not alone, cancer warriors
Check my:Link to my blog

 

Upcoming Events - see Calendar too

  • Apr 26
    Multiple Myeloma Research Foundation Race for Research, Boston, MA,  South Boston
     
  • May 6
    American Society of Clinical Oncology ASCO CLQ Advisory, Alexandria VA/Washington DC,  Alexandria
     
  • May 15
    International Waldenstrom's Macrogloublinemia Foundation, Education Forum, Tampa, FL,  Tampa
     
  • May 30
    American Society of Clinical Oncology (ASCO) 50th Annual Meeting, Chicago, IL,  Chicago
     
  • Jun 1
    Health DataPalooza, Wash, DC Jack's team from Tufts Medical Blue Button awarded this conf.,  Washington
     

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Professional Research Advocacy

Society for Participatory Medicine

Health Advocate Code of Conduct and Professional Standards

WEGO Health Speakers Bureau

American Association for Cancer Research

 American Society of Clinical Oncology

 

Research Advocacy Network

 

 

 

 

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Cancer Today MagazineCancer Today Story

I'm honored to be featured in Cancer Today magazine.  The author and now very good friend, Betty Russell and the Cancer Today team from AACR did a great job telling "my story".  I hope you find it helpful and hopeful and fun.  Sit back, relax and read.  I'm thankful for photos of my family and many friends who have been with me all the way. 

The medical team at Dana Farber Cancer Institute and Brigham & Women's Hospital is exceptional.
 
A special thanks to my oncologists- Dr. Nancy Chun at Winchester Hospital and Dr. Irene Ghobrial at Dana Farber Cancer Institute.  Far too many folks to thank here. 
  
BIG HUGS,    Jack
 

 

 

Welcome blood cancer peeps

Welcome blood cancer patients, caregivers & healthcare pros. Whether you're a patient, provider, payer or pharmaceutical, I hope you like this Research Advocate patient perspective on the research, care and cure of blood cancers, specifically Lymphoma, Leukemia and Myeloma.   

Until recently, I've been quiet about my 6 year battle with an incurable blood cancer, unusual for someone who's not afraid to speak up. As my best Italian friend Greg says, "you gotta do what you gotta do".  I'm beating this incurable cancer betting on Clinical Trials where targeted molecular agents are in development rather than conventional chemotherapy which is often borrowed from other blood cancer regimens to treat my specific blood cancer. Personalized "precision" Medicine is now changing all that. If you are facing a cancer battle, you must explore what treatment options are in Clinical Trials!

So I began writing and presenting key issues about living with blood cancer.  I started appearing on some TV and radio and got picked up by some national newspapers because of some charitable and fundraising activities and because there's an urgent need to educate lawmakers and government officials who make decisions about your healthcare options.  I went public!  It's no secret, I love public speaking, talking to the press, and helping other patients and caregivers. I'm earning my stripes as an effective Research Advocate and Event Speaker with a compelling message.

 

Personalized Medicine and the ePatient

There is a lack of knowledge about Personalized Medicine in development outside of a few leading centers of excellence and academia. With ubiquitous access to on-line information, the e-Patient movement is well underway, very positive for patients, healthcare professionals and providers.  Your physician may no longer the primary source of much needed, more current info, you can help. 

I've been told, "you should write a book, do more public speaking, get the message out about so many important topics".  I think I can communicate with more people via this site and blog to deliver more timely information and messages. Check my Twitter feed @JackWhelan.    

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Please click my Blog for some fun and not so obvious patient insight. Learn what a CT scan has in common with a loaf of bread. What's is like to sit in an infusion chair? Look around, click one of the RED LINKs above.  I'd like to hear from you too! Thanks.   Jack

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