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Here's news and info about three primary blood cancers, Lymphoma, Myeloma and Leukemia with a decided patient's perspective.  I hope this helps whether you're newly diagnosed or veteran survivor.  

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How to stay out of ambulances, not a free ride

I'm devoting an entire chapter in my book on How to Stay Out of an Ambulances or some title acceptable to the publisher. Cancer patients should explore what circumstances or events can cause a ride in an ambulance.  Geeze, it must really be serious.  I've taken only two rides.  

Today was particularly scary for my family, not me as I wasn't conscious or 'with it' for much of the excitement.  ....Shortly after leaving the infusion room, I began to shake rattle n' roll, better known as 'the rigors', not uncommon to cancer warriors.  ....   Contacted by telephone, nurses at DFCI said, get to the nearest Emergency Room, 

Later, when I awoke in the Emergency Room, I could see incredible fear in the faces of my wife and three daughters.

Boston Marathon - Jimmy Fund Walk - Dana Farber -Sept 9th

On the local front, folks from New England actively participate in charitable Boston Marathon - Jimmy Fund Walk - DFCI events that support our medical institutions. Since its founding in 1947 Dana-Farber Cancer Institute has been committed to providing cancer patients with the best care possible while developing tomorrow's cures with cutting-edge today.  That research is an expensive proposition, some of which is funded by caring people and institutions that volunteer their time, talent and fundraising efforts on behalf of the institution.  

Hundai in conjunction with the Jimmy Fund is sponsoring a one-day event on Sunday, September 9th 2012 that unites thousands of walkers, patients, caregivers, medical professionals, volunteers and sponsors to raise funds to help Dana-Farber conquer cancer.

For more information about the walk, to explore walking, finding a team, giving, volunteering or sponsoring please click this image- Use $5.00 off registration code: DANAFARBER 

There ought to be a law - Pill Form Chemotherapy not covered

My friends at the Leukemia & Lymphoma Society asked me if I would volunteer (ouch, there I go again) and tell my story at the Massachusetts State House.  We met with lawmakers to tell them about a historical quirk in Massachusetts law that sets insurance coverage for certain types of pharmacy costs at much lower than other pharmacy and medical care costs. The original law was established to set a scale of pharmacy reimbursement coverage but at that time, lawmakers didn't know about the current emerging pill form chemotherapy. So rather than sitting in an infusion room chair as I have for many hours, I can take a pill-form of chemo at home.  

But here's the glitch.  Because it's pill-form, it's considered Pharmacy expense and classified as a special category ... reimbursed only at 70%,  We're doing some gentle arm-twisting to get the Senate President to put this bill on the docket before the end of July.

Happy Birthday

The Birthday celebration that might not have been      

If I had believed most of the then available published research concerning survival, morbidity rates, age-adjusted death rates, crude death rates and other scary scenarios associated with my rare blood cancer at the time of diagnosis, I wouldn't be celebrating my Birthday today.  My oncologist flatly told me, you are an individual, you don't necessarily fit into one of those pie charts or graphs that use historical information that doesn't apply to you.  Well, that's a relief. Not.   

But damn, no matter where I look, it says to expect a five to seven year survival. .... 

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