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Here's news and info about three primary blood cancers, Lymphoma, Myeloma and Leukemia with a decided patient's perspective.  I hope this helps whether you're newly diagnosed or veteran survivor.  

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We are not alone! - Blood Cancer Agencies & Information

After you've checked this site, please see what information and services are available at the leading non-profit, blood cancer patient support organizations presented here.   Don't limit your exposure to only the agency that focuses on your blood cancer.  

If you have Lymphoma, check out the Multiple Myeloma Research Foundation because you'll see there are many common threads surrounding research, care, services.   For example, a Lymphoma patient may want to learn about the side effects of Bortezomib (Velcade) a chemotherapy that was initially developed to treat Myeloma but found to be effective for certain types of Lymphoma.  A Leukemia patient having just received a bone marrow transplant may find information about mouth sores a common affliction suffered by patients who are have weak immune systems from the effects of certain types of chemotherapy.   Subscribe to the email lists or newsletters of two or more of these organizations and seriously consider making a donation.  Also, explore what local chapters are in your area to connect with others living with the type of blood cancer. 

Waldenstrom's Macroglobulinemia

The International Waldenstrom's Macroglobulinemia Foundation (IWMF) was established in 1994 to offer support and information and to fund research for WM patients and caregivers managing of this rare form of Lymphoma for which there is still no cure.  Connect with the IWMF- the primary information source and community. This entire team of non-paid patients and volunteers is highly motivated and focused on providing information and educational programs that address patient and caregiver concerns and to make smart investments with the contributions to promote research leading to a much-needed cure. If you want to learn more, please click the logo to visit IWMF. 

 

The Leukemia & Lymphoma Society is perhaps the largest voluntary health advocacy dedicated to blood cancer.  This organization is incredibly well-funded and well-managed.  Through a variety of high visibility charity events, LLS earns high marks for engaging small and large sponsors and an army of volunteers that contribute their time and money to help blood cancer patients live better, longer lives.  LLS has a rich 60 year history supporting groundbreaking, lifesaving research.  LLS provides the most comprehensive information and patient services for the leading blood cancers, Leukemia, Lymphoma and Myeloma.  The Patient Education Programs in particular are exceptional.  LLS has a vibrant active network of local chapters that include patients, caregivers and LLS professional caring staff that leverage the efforts of a passionate volunteer force.  Check the LLS team today.  

 

Multiple Myeloma Research Foundation

The Multiple Myeloma Research Foundation's (MMRF) charter is to relentlessly pursue innovative means that accelerate the development of next-generation multiple myeloma treatments to extend the lives of patients and lead to a cure.  Whether you're dealing with Myeloma or another blood cancer, be sure to learn about the information and resources available to you from this incredibly focused, exceptionally managed research foundation. The spirit, attitude and indefatigable efforts of the founding twin sisters Kathy Guisti and Karen Andrews has created a "can-do" culture at MMRF. They have assembled at team of bright, motivated, talented people who's primary mission is to fund transformative research to develop progressive, life-extending treatments that myeloma patients so urgently need.    Click to visit now to explore joining and contributing today. 

 

Lymphoma Research FoundationThe Lymphoma Research Foundation (LRF) is the United States' largest non-profit organization devoted exclusively to funding cutting-edge Lymphoma research projects.   LRF provides Lymphoma patients, caregivers and healthcare professionals with up-to-date information about this type of blood cancer.  LRF's primary mission is to help eradicate Lymphoma and serve those touched by this disease.  Singularly focused on the variety of Lymphoma cancers, LRF provides a wealth of information about Lymphomas whether you are still waiting for results or a long-term survivor seeking the latest information.  LRF has in depth resources and information for Patients and Professionals.  The Lymphoma Support Network is particularly helpful for the recently diagnosed patient that needs some objective guidance and perhaps a gentle nudge in the right direction about what to do next. Click the logo and consider joining and contributing today.